The actual "sharing" was using the Meta pixel and TikTok's equivalent, presumably so the healthcare exchanges could do retargeting or similarity-based marketing to get people to sign up for health care coverage. Which, narrowly, seems like a reasonable thing to do. But of course using the pixel automatically "shares" the data with Meta/ByteDance/whoever, and they get to use it for whatever nefarious purpose they want.
It should be illegal to send the data, and illegal to accept it; burn both sides of that bridge.
Every piece of data collected should be an opt-in both for the initial collection and any sharing to a third party. There should be an explanation for why it is collected and an explanation for what features are not possible if it is not collected. It should be a violation of the law to disable a feature based on failure to opt-in for data points that aren't absolutely necessary for the operation of that feature.
At least make it an explicitly protected right to lie about your race in any context
Why would politicians ever pass such a law? Who do you think they work for?
What's the point of this kind of comment? Have pro-citizen anti-corporate laws never been passed in the past?
The point of the comment is to spread toxic and deadly cynicism.
If you never trust anyone at all, nobody will take advantage of you, instead you'll fool yourself.
They work for the people. In some countries, people actually vote for politicians that benefit the population. In other countries, people repeatedly vote for politicians despite knowing that those politicians are only interested in enriching themselves, with a track record going back decades of doing nothing but that. The problem, then, is the voters in certain countries, not the politicians.
Ideally because we'd vote in politicians who would do it, and vote out those who didn't.
Is that even possible in the US anymore with donations and corporate backing being so important to a campaign?
I don't believe donations or corporate backing had anything to do with Trump, for example, winning. Trump won because he genuinely appeals to the average voting American. American voters are willingly choosing these policies and all of the consequences they entail.
I wouldn't be surprised if both are illegal. But these days, the correlation between "X is illegal" and "larger org's do not do X" just ain't what it yousta be.
> Nearly all of the 20 state-run health insurance exchanges in the US have added advertising trackers that transmit user activity
...why?
> State officials say they embed this technology on the exchanges to measure marketing campaigns and to advertise to people who visit their sites
What an absurdist reality we live in
> Tara Lee, a spokesperson for the Washington state exchange, said the tracker on the site was used for advertising campaigns, adding that email, phone and country identifiers were shared with TikTok.
Personally, I feel local government should not be engaging these services in this way. I don't feel that it's a wise use and that our government employees should be more protective of the public who use their services.
HIPAA applies to healthcare professionals and providers, not ad tech companies. And race and citizenship are not personal health-related data.
[deleted]
HIPAA as a law is intended to ease transfer of medical information, not restrict it.
That's not true. It's intended to define a regulated and standard means of transferring medical information while ensuring confidentiality and patient privacy.
You have to explicitly grant permission for your data to be sold. What's very likely is that either the healthcare provider or insurance company included a request for authorization to sell that data, and the authorization was signed without paying much attention to it.
You're referring to the privacy rule, which is only part of the law (and not its primary prupose). The original intent of the law was to ensure easy transfer of information to keep health coverage when changing jobs. The privacy rule was not even part of the original law, it was added by HHS 3 years later. See more details here: https://www.ncbi.nlm.nih.gov/books/NBK9576/
Narrator: "But it did neither."
Honestly, we're better off with it than without it, speaking as someone with exposure to that industry's internals. That act drives a lot of good security practice within the organizations (mostly liability shifting, but still good). Specifically, the fear it instills of ruinous penalties from regulators drives good practice adoption, IME.
Further, multiple crappy patient portals across providers is a crummy experience, but it's an improvement over the world where providers held the data hostage and had zero interest in accommodating your requests for it, or even the idea that you owned it.
"The Health Insurance Portability and Accountability Act (HIPAA) of 1996 is a US federal law designed to protect sensitive patient health information from disclosure without consent."
Could you please cite the source for that quote? I looked for it, but couldn't find a source; it seems like an AI hallucination.
Why would you call it an hallucination because you cant find immediately locate the source? You didnt say what in the single sentence would make you jump to that conclusion.
I highlighted SirFatty's text, looked up on google and first result show it near verbatim on cdc.gov.
Here's the original text of the bill's purpose; very little of the bill talks about privacy, and most of the rules around that are part of the HHS Privacy Rule.
To amend the Internal Revenue Code of 1986 to improve portability and continuity
of health insurance coverage in the group and individual markets, to combat
waste, fraud, and abuse in health insurance and health care delivery, to promote
the use of medical savings accounts, to improve access to long-term care services
and coverage, to simplify the administration of health insurance, and for other
purposes.
That's not really correct. It was designed for portability- the ability to move data between health care providers.
(I work in healthcare-adjacent and have met with many lawyers and had to explain them all about "HIPAA compliance"; my comment was not made from ignorance, but practical experience based on learning about how the law is used. There is a privacy rule in it, but that was not the real intent of the law. The intent was to make it easy to keep your health care when you moved between jobs.)
The US citizens will have to fight down those corporate overlords. It is now really just shameful how they leech off of the common man (and common woman). People in democracies outside of the USA shake their head in sadness now. Even Canada is doing better here - don't tell anyone the crazy orange king, for he may begin to potty-mouth and threaten them with invasion again.
corporate overlords? These are the state governments selling your data. The call is coming from inside the house. The sooner we realize that government is comprised of the same slithering slime of human greed and laziness, the more realistic discussions we can have.
anecdata - in Berkeley CA, in the late 2010s, two individuals showed up to be in the fast-paced AD scene. One was from a former Soviet Union country, who spoke English pretty well .. and the other a woman from Columbia .. to say that both of these two were "aggressive" is an understatement. He spoke English, she was in charge of "security" .. after a very few meetups, they both formed a company for "Ad tech for Hospitals" .. it was "heavy security" they said, and therefore did not discuss any details in public. They very obviously would do "aggressive" actions to get into the business, defeat competitors, and satisfy ..clients? Who were they satisfying with the cultural norms, constantly aggressive stance, move fast and break things approach? Every single person involved had the motivation of Big Money, Now.
The actual "sharing" was using the Meta pixel and TikTok's equivalent, presumably so the healthcare exchanges could do retargeting or similarity-based marketing to get people to sign up for health care coverage. Which, narrowly, seems like a reasonable thing to do. But of course using the pixel automatically "shares" the data with Meta/ByteDance/whoever, and they get to use it for whatever nefarious purpose they want.
It should be illegal to send the data, and illegal to accept it; burn both sides of that bridge.
Every piece of data collected should be an opt-in both for the initial collection and any sharing to a third party. There should be an explanation for why it is collected and an explanation for what features are not possible if it is not collected. It should be a violation of the law to disable a feature based on failure to opt-in for data points that aren't absolutely necessary for the operation of that feature.
At least make it an explicitly protected right to lie about your race in any context
Why would politicians ever pass such a law? Who do you think they work for?
What's the point of this kind of comment? Have pro-citizen anti-corporate laws never been passed in the past?
The point of the comment is to spread toxic and deadly cynicism.
If you never trust anyone at all, nobody will take advantage of you, instead you'll fool yourself.
They work for the people. In some countries, people actually vote for politicians that benefit the population. In other countries, people repeatedly vote for politicians despite knowing that those politicians are only interested in enriching themselves, with a track record going back decades of doing nothing but that. The problem, then, is the voters in certain countries, not the politicians.
Ideally because we'd vote in politicians who would do it, and vote out those who didn't.
Is that even possible in the US anymore with donations and corporate backing being so important to a campaign?
I don't believe donations or corporate backing had anything to do with Trump, for example, winning. Trump won because he genuinely appeals to the average voting American. American voters are willingly choosing these policies and all of the consequences they entail.
I wouldn't be surprised if both are illegal. But these days, the correlation between "X is illegal" and "larger org's do not do X" just ain't what it yousta be.
> Nearly all of the 20 state-run health insurance exchanges in the US have added advertising trackers that transmit user activity
...why?
> State officials say they embed this technology on the exchanges to measure marketing campaigns and to advertise to people who visit their sites
What an absurdist reality we live in
> Tara Lee, a spokesperson for the Washington state exchange, said the tracker on the site was used for advertising campaigns, adding that email, phone and country identifiers were shared with TikTok.
https://www.bloomberg.com/features/2026-healthcare-advertisi...
Personally, I feel local government should not be engaging these services in this way. I don't feel that it's a wise use and that our government employees should be more protective of the public who use their services.
Bloomberg Study: https://www.bloomberg.com/features/2026-healthcare-advertisi...
How is this not a HIPAA violation?
HIPAA applies to healthcare professionals and providers, not ad tech companies. And race and citizenship are not personal health-related data.
HIPAA as a law is intended to ease transfer of medical information, not restrict it.
That's not true. It's intended to define a regulated and standard means of transferring medical information while ensuring confidentiality and patient privacy.
https://www.hhs.gov/hipaa/for-professionals/privacy/laws-reg...
You have to explicitly grant permission for your data to be sold. What's very likely is that either the healthcare provider or insurance company included a request for authorization to sell that data, and the authorization was signed without paying much attention to it.
You're referring to the privacy rule, which is only part of the law (and not its primary prupose). The original intent of the law was to ensure easy transfer of information to keep health coverage when changing jobs. The privacy rule was not even part of the original law, it was added by HHS 3 years later. See more details here: https://www.ncbi.nlm.nih.gov/books/NBK9576/
Narrator: "But it did neither."
Honestly, we're better off with it than without it, speaking as someone with exposure to that industry's internals. That act drives a lot of good security practice within the organizations (mostly liability shifting, but still good). Specifically, the fear it instills of ruinous penalties from regulators drives good practice adoption, IME.
Further, multiple crappy patient portals across providers is a crummy experience, but it's an improvement over the world where providers held the data hostage and had zero interest in accommodating your requests for it, or even the idea that you owned it.
"The Health Insurance Portability and Accountability Act (HIPAA) of 1996 is a US federal law designed to protect sensitive patient health information from disclosure without consent."
Could you please cite the source for that quote? I looked for it, but couldn't find a source; it seems like an AI hallucination.
Why would you call it an hallucination because you cant find immediately locate the source? You didnt say what in the single sentence would make you jump to that conclusion.
I highlighted SirFatty's text, looked up on google and first result show it near verbatim on cdc.gov.
https://www.cdc.gov/phlp/php/resources/health-insurance-port...
Here's the original text of the bill's purpose; very little of the bill talks about privacy, and most of the rules around that are part of the HHS Privacy Rule.
To amend the Internal Revenue Code of 1986 to improve portability and continuity of health insurance coverage in the group and individual markets, to combat waste, fraud, and abuse in health insurance and health care delivery, to promote the use of medical savings accounts, to improve access to long-term care services and coverage, to simplify the administration of health insurance, and for other purposes.
That's not really correct. It was designed for portability- the ability to move data between health care providers.
(I work in healthcare-adjacent and have met with many lawyers and had to explain them all about "HIPAA compliance"; my comment was not made from ignorance, but practical experience based on learning about how the law is used. There is a privacy rule in it, but that was not the real intent of the law. The intent was to make it easy to keep your health care when you moved between jobs.)
The US citizens will have to fight down those corporate overlords. It is now really just shameful how they leech off of the common man (and common woman). People in democracies outside of the USA shake their head in sadness now. Even Canada is doing better here - don't tell anyone the crazy orange king, for he may begin to potty-mouth and threaten them with invasion again.
corporate overlords? These are the state governments selling your data. The call is coming from inside the house. The sooner we realize that government is comprised of the same slithering slime of human greed and laziness, the more realistic discussions we can have.
anecdata - in Berkeley CA, in the late 2010s, two individuals showed up to be in the fast-paced AD scene. One was from a former Soviet Union country, who spoke English pretty well .. and the other a woman from Columbia .. to say that both of these two were "aggressive" is an understatement. He spoke English, she was in charge of "security" .. after a very few meetups, they both formed a company for "Ad tech for Hospitals" .. it was "heavy security" they said, and therefore did not discuss any details in public. They very obviously would do "aggressive" actions to get into the business, defeat competitors, and satisfy ..clients? Who were they satisfying with the cultural norms, constantly aggressive stance, move fast and break things approach? Every single person involved had the motivation of Big Money, Now.
Relevance?